The ALS Association is a charity designed to combat Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. ALS primarily attacks the nerves in the brain and spinal cord eventually disconnecting communication between motor nerves. The progressive degeneration of motor nerves can lead to death (ALS.org).
The ALS Association has raised a substantial amount of money through their famous “Ice Bucket Challenge.” The Ice Bucket Challenge dares those who accept it to pour a bucket of ice water over their head. Those who fail to accomplish this challenge, during the required time, are asked to donate to the association.
Through this fundraiser, they have raised millions. How much exactly? As of August 29, 2014, the ALS Association had raised over $100 million and the number keeps increasing.
However, there is growing speculation of how the association is managing their money. A recent financial report released by the ALS Association shows that they are only investing 28% percent of fundraised money to find a cure for ALS. People are surprised to find out that a so-called non-profit organization is doing so little to find a cure.
In reality, the ALS Association does a lot to help combat ALS. Their research includes identifying ALS genes, understanding disease mechanisms, using stem cells for disease modeling and therapy testing, finding disease biomarkers, developing therapies, and improving clinical trials (ALS.org).
Finding a cure is not as easy as it seems, so meanwhile, they provide community services such as therapy and support groups to help those already suffering from ALS.
*Numbers are from our latest financial statement
*Annual Report Pie Chart Adjustment
Due to an anomaly that occurred during the rounding of the financial data for the pie chart, the percentages totaled only 99 percent. After recalculating, we have adjusted the percentages to correctly reflect that 28 percent, instead of 27 percent, is allocated to research. We regret this oversight and apologize for any confusion.